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My what big ears you have

3/7/2013

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The first week of March was a big week for us.  WE GOT HEARING AIDS.  I was very excited about this.  Not because it will let her hear, it's obvious she still can't, but because it means we have started something.  The plan is in action.  

The HEAR Center really is an amazing resource for the state of Alabama.  I've only been twice now and I love it.  Maybe it's still the "honeymoon phase" of the relationship, but so far so good.  Since, Bentley won't be wearing hearing aids permenately they provided her with a loaner pair.  They are pretty and pink.  Very cute.  Bentley will have to wear them at least 6 months while also attending a very strict regimen of speech therapy leading up the cochlear implants.  

So far they squeal like a stuck pig, but we're figuring them out.  Fortunately for us she can't pull them off and chew on them yet.  I hear that is annoying 30-40 times per day.  

We also started at The Bell Center (www.thebellcenter.org).  I'm already blown away by this place.  I am equally impressed by the therapists we have met and will use through Hand in Hand and AIDB.  They have all been awesome.  I am pointing out The Bell Center mainly because of the resources they have, and the breadth and depth with which they provide therapy.  We are so excited about becoming a part of the The Bell Center family.  I get to take Bentley twice a week.  When we move to Dothan this summer, Lindsay will be making the trip back to Bham for speech therapy at the HEAR Center as well as The Bell Center each week.  Maybe I should get a Prius.

I need to go ahead and give a shout out to our families again.  They have been awesome lately.  They have been here so much we even got a letter from the HOA about being parked on the street too much.  Lindsay got upset because I am actually on the HOA board.  HAHAHAHAHAAHA.  I thought it was hilarious (i knew it was coming).

Oh yeah.  We got the ERG report back.  According to some flashing lights and sticky electrodes, Bentley is blinder than a bat.  Unfortunately she lacks the sonar bats have to navigate in a cave.  I'm pretty sure she can see some light, such as the sun, but it's too early to know to what extent.

2 Comments
Traci
3/27/2013 05:29:22 am

My nephew has downs and went to the bell center before moving to Chicago. My bro and sis in law were so impressed with the bell center and feel like it really helped him progress much faster than he normally would have. Praying for your family.

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Jean Summers link
5/21/2022 07:18:02 am

This was grreat to read

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    I will be writing most of these.  Justin, that is, the dad.  Lindsay will provide her input.  

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