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Time for Prayers, pretty PlEaSe #11

1/16/2016

23 Comments

 
​Bentley is still at it.  Driving her mom and dad crazy.
 
On Friday Bentley spent the day on the ventilator.  She was bronch’d again with nothing significant found.  Friday night she decided to pop spontaneous pneumothoraxes (sp) in both lungs.  This resulted in chest tubes being placed on both sides, again.  From what patients tell me, chest tubes are rather painful and uncomfortable.  So we have added some pain medicine to her schedule to help with the discomfort.  She also received a PICC line for a more sustained IV access.  Pulmonology was brought on board to help with the brainstorming as to why she is having so much trouble respiratory-wise, and to help as we prepare a long term plan for B.  She has played with some noise making toys today, but she has not had much activity otherwise.  On an up note, Ally came by to visit today, Bentley’s sister.  She has been with Mimi and Pop for the last week.  Still cute as a button, fat, and happy.  Bentley still doesn’t care much for her, so we left her in the waiting room and rotated through.  I took a nap with her this afternoon.
​It is obvious Bentley has trouble finding a comfortable position.  She is also getting somewhat resistant to anyone or anything touching her.  So many stimuli have been painful lately, she winces in anticipation when I try to hold her hand or rub her leg.  Keeping her ears on would probably help, as we could all talk to her before we touch her, but keeping them on in this bed is not the easiest thing.  In addition, the noise on an ICU is not always “clean” noise.  There is lots of commotion, hisses, rattles, bells, and talking which is not something she usually enjoys hearing for long periods of time.  We have done a pretty terrible job of letting her know what is about to come, mostly because we haven’t kept her ears on.  Everyone has been pretty good at talking to her as they work with her.  Mom and Dad just need to be more consistent with letting her hear.    
 
Please pray for all of us, nurses, doctors, techs, therapists, mom and dad, to be more aware of ways to improve the sensations and environment of Bentley’s room.  I can only imagine having so much negative stimuli will begin to take its toll. 
23 Comments
Lauren
1/16/2016 06:49:07 pm

Praying for each of you and would gladly do anything you could think of that might be helpful!! Bentley is so lucky to have you two as parents. Please don't hesitate to call on me!!

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Jess
1/16/2016 08:46:46 pm

Love you so much. Hate this roller coaster and pray for peace and rest for all three of you. And of course complete healing of sweet B.

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Jeanne Halfman
1/16/2016 10:10:20 pm

Prayed at mass tonight for all of you and several times throug out the day. Will again before I fall asleep. Precious little one, get well soon! Big hugs!

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Karen Isaminger
1/17/2016 04:19:31 am

Prayers for everyone

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Kendall Boggs link
1/17/2016 05:22:12 am

Lynn and I are thinking of you guys constantly and praying every day for everyone. I know she will turn a corner soon. We love you!
kendall

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Kim Redmond
1/17/2016 06:21:18 am

Praying without ceasing for sweet B. Praying for her comfort, understanding and healing. Also praying for all of your sweet family and all the care givers .

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Sally DeWitt link
1/17/2016 08:13:09 am

Praying for a complete healing, Justin.

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Kathie Ramsey
1/17/2016 09:48:25 am

Continuing to pray for B and your amazing family!

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Colette Tatum
1/17/2016 11:11:41 am

We will continue to pray for all helping y'all. Prayers of strength for mom dad & B.

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Jen
1/17/2016 11:41:46 am

Praying for Bentley and for all. Hoping she gets stronger every moment.

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Natalie French
1/17/2016 12:32:22 pm

Keeping everyone in my prayers!

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Wes Savage
1/17/2016 01:34:13 pm

May the Great Physician continue to work in mighty ways as sweet Bentley is nurtured and cared for by the dedicated folks at Children's and her loving family.

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Crispen Lott
1/17/2016 06:00:11 pm

Prayers continue here. I am so sorry all of you are going through this. My heart breaks for sweet Bentley. I hope they can find resolution soon.

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Marilyn Sills
1/17/2016 06:57:50 pm

Justin don't be hard on yourselves. Y'all are amazing. Will keep praying for all of you!

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Janet Turman
1/17/2016 08:16:57 pm

I can't even imagine all the juggling you are doing each moment of each day- how amazing you are. I am praying for you all and for Bentley. God bless you and everyone who is involved in baby B's care. Sending love too...

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judy meadows
1/17/2016 11:17:09 pm

Praying for the doctors and staff to increase in wisdom and discernment; for the Lord to anoint all who are part of Bentleys recovery. We know God's timing is perfect and that He loves her so. Putting the whole armor of God on your precious little girl. Total healing is claimed in the name of Jesus. We love you all and continue to lift her up to our Mighty Abba Father.

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Meredith
1/18/2016 03:50:57 am

All of you continue to be in my thoughts and prayers.

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Chet Moeller
1/18/2016 06:11:21 am

I have been praying for Bentley since Rachel told me about her. Please be as detailed as you can so I can pray specifically. Thank you for loving your children and sharing your victories, needs, and concerns. Chet

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Suzanne Mullens
1/18/2016 06:50:23 am

God is holding her tiny head in his hands and whispering.... I love you Bentley.... Stay strong.... And her heart smiled and Jesus held her tight and is whispering a miracle of strength to her. I believe in any and all miracles. Bentley, be strong...
Love you all and those sweet 10fingers and 10toes.

Justin and Lindsey God has given you the power to be loved and be strong. Heather and I are praying and love you all.!!

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Liz Logan
1/18/2016 07:52:00 am

Praying for you all. Prayers for peace and healing for Bentley,Mama and Daddy.

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SANDRA TURNER
1/18/2016 08:32:06 am

Praying for all of you. So sorry this sweet baby is having such a hard time.

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Jerry Burch
1/18/2016 07:19:49 pm

Prayers for you all daily - stay strong.

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Debbie Etheridge Kirby
1/19/2016 05:44:18 am

Continue praying for God to heal Miss B!!

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