On Friday Bentley spent the day on the ventilator. She was bronch’d again with nothing significant found. Friday night she decided to pop spontaneous pneumothoraxes (sp) in both lungs. This resulted in chest tubes being placed on both sides, again. From what patients tell me, chest tubes are rather painful and uncomfortable. So we have added some pain medicine to her schedule to help with the discomfort. She also received a PICC line for a more sustained IV access. Pulmonology was brought on board to help with the brainstorming as to why she is having so much trouble respiratory-wise, and to help as we prepare a long term plan for B. She has played with some noise making toys today, but she has not had much activity otherwise. On an up note, Ally came by to visit today, Bentley’s sister. She has been with Mimi and Pop for the last week. Still cute as a button, fat, and happy. Bentley still doesn’t care much for her, so we left her in the waiting room and rotated through. I took a nap with her this afternoon.
Please pray for all of us, nurses, doctors, techs, therapists, mom and dad, to be more aware of ways to improve the sensations and environment of Bentley’s room. I can only imagine having so much negative stimuli will begin to take its toll.