Wrapping up day 4 in PICU. I speak for Lindsay in saying we were kind of hoping for a more eventful day, but Bentley was not having it. I blame her completely.
Beginning the day, the plan was to completely turn off sedation meds and let her wake up. Once she was awake we were going to try some CPAP trials to see how she was breathing. -Oh yeah, her lung is looking a lot better, they tell me.- So we waited. And we waited some more. And we ate lunch. And we watched Frozen. And we waited some more. B just didn’t feel like waking up enough for us. We did get her stirring a few times, but not enough to breath without a tube. Some of you may have seen her get fed up with the noise in a room and reach up and flip off her ears. Well, when I turned on Frozen, she did just that. She drunkenly reached up with her left arm, taped up with an IV, and found the tiny CI cable tangled in her hair and pulled the mic off. I laughed out loud. Shortly after her doctor came in, a spritely short woman, and said “put her ears on, get her awake”. I chuckled to myself thinking, “You don’t know this girl, she’s as stubborn and determined as you are”.
So, all sedatives are off. We are letting her wake up, when she wants to, and trying to get this ventilator out of this room. They did start back her tube feedings this evening to give her a little boost of nutrition. I have her all tucked in tonight, we read our stories and said our prayers.
Thank you for the continued prayers. The team here continues to dominate in my book. Very appreciative of all of the love and support. Thank you!