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Time for Prayers, pretty please #4

1/8/2016

11 Comments

 

11:35pm
​Wrapping up day 4 in PICU.  I speak for Lindsay in saying we were kind of hoping for a more eventful day, but Bentley was not having it.  I blame her completely. 
 
Beginning the day, the plan was to completely turn off sedation meds and let her wake up.  Once she was awake we were going to try some CPAP trials to see how she was breathing.  -Oh yeah, her lung is looking a lot better, they tell me.-  So we waited.   And we waited some more.  And we ate lunch.  And we watched Frozen.  And we waited some more.  B just didn’t feel like waking up enough for us.  We did get her stirring a few times, but not enough to breath without a tube.  Some of you may have seen her get fed up with the noise in a room and reach up and flip off her ears.  Well, when I turned on Frozen, she did just that.  She drunkenly reached up with her left arm, taped up with an IV, and found the tiny CI cable tangled in her hair and pulled the mic off.  I laughed out loud.  Shortly after her doctor came in, a spritely short woman, and said “put her ears on, get her awake”.  I chuckled to myself thinking, “You don’t know this girl, she’s as stubborn and determined as you are”.
 
So, all sedatives are off.  We are letting her wake up, when she wants to, and trying to get this ventilator out of this room.  They did start back her tube feedings this evening to give her a little boost of nutrition.  I have her all tucked in tonight, we read our stories and said our prayers. 
 
Thank you for the continued prayers.  The team here continues to dominate in my book.  Very appreciative of all of the love and support.  Thank you!
​
11 Comments
Denise Lewis
1/8/2016 10:10:00 pm

Continued prayers for a speedy "wake up" of sweet Bentley

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Patty Durham
1/9/2016 05:04:45 am

Prayers continue for beautiful Bentley and all of you. God bless and be with all those taking care of her and many others.

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Katie Wallace
1/9/2016 06:05:57 am

Precious video! She is so much fun! Praying for big progress for her this weekend!

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Ann Molony
1/9/2016 06:36:03 am

Praying for sweet Bentley and her entire family. Thinking of you all every day.

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Nancy Fox
1/9/2016 07:20:10 am

Praying for your sweet little one!

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Melanie Kranik
1/9/2016 08:56:21 am

I'm in bible study with Teresa Bryant. I believe she is your aunt. Anyway, we know all about Bentley and we have been praying. I loved your last update when she pulls the ears off. How determined is that little one. She knows what she likes!!! God Bless Bentley and you and your family. We'll keep praying. Melanie

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Jess
1/9/2016 10:36:01 am

Love y'all sooooo much

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Janet Turman
1/9/2016 11:50:26 am

Prayers are flowing to and through Bentley- to all of you- sending love and peace!

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Jennifer johnston
1/9/2016 07:02:35 pm

Love, prayers, to all of you. Specially praying for Bentley as she gets stronger

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rosie sciacca
1/9/2016 07:10:41 pm

Beautiful video. Thank you for sharing. She just makes my heart smile. The two of you are such amazing parents. Praying tomorrow will be a wide awake day for her and that she is ready to tackle the hard work to make it back home very, very soon. Love and prayers for all.

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Marilyn sills
1/9/2016 08:53:14 pm

I am praying for you all everyday. You guys are amazing. I've worked in the field of deaf blindness for years and I am so proud of you. Love you praying always

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    I will be writing most of these.  Justin, that is, the dad.  Lindsay will provide her input.  

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