10 Little Fingers
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Time for Prayers, pretty please #6

1/10/2016

7 Comments

 
​Sunday fun day in PICU.  Bentley did great throughout the night.  She tolerated her chest PT and and rested very soundly.  I was feeling rather encouraged that she might be able to tolerate the bipap.  Bentley showed more of herself today than any since her admission.  She pulled off her socks a few times and tried sitting up with her legs crossed.  We even got her out of bed so she could sit with Lindsay for a little while.  However, as the morning progressed it became evident that Bentley was working very hard to breathe. 
 
Her little body was simply exhausted.  The amount of respiratory support she was demanding reached the limits and demonstrated a need for more assistance.  Bentley was tired.  She needed to rest.  She was uncomfortable and was searching for a deep breath.  Her body needed a little more time to recuperate in order to support the effort her lungs were demanding.  Bentley was intubated around lunch, or a little after (breathing tube put back in place).  This will provide her more time to recover, build strength and stamina, and tolerate the efforts of coughing and exercising her lungs through a normal day.  It looks like a step backwards, but through this I am confident she will be able to recover her lungs to a level in which her body can keep up. 
 
She is still a stubborn determined sly little girl.  You can see it below the surface.  A little time and rest should make great strides.  She isn’t giving up, she just needs to stop and catch her breath.  Thank you to everyone lifting her and her team up. 
 
Psalms 18:32, It is God who arms me with strength and keeps my way secure.
7 Comments
Ann
1/10/2016 08:11:39 pm

Justin you are an amazing young man, an inspiration for the Faithful and a warrior for our "Sovereign God" Will keep your family always in my prayers. ( selfishly ) I am blessed to know you.

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Jess
1/10/2016 08:20:55 pm

Love you sooooo much. Sometimes we have to take one step back to take two steps forward. Bent is blessed to have such a caring daddy keeping her friends and family updated to know what to pray for!! Xoxo

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Jane Goron
1/11/2016 06:54:02 am

Sending love and prayers to all of you. She is a special little angel who was sent to you to cause positive change. The love you share for each other is the best medicine - and the strong bond that keeps her going. And look how many people this story has touched at the heart - how many people have come together - her smile is priceless - in that smile is total, unconditional love and a purity so much needed in this world today. I pray for strength and courage for all of you.

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Debbie wood
1/11/2016 07:08:04 am

Continurd prayers for you little bu dle of strength and joy. Also praying for Butch because little Bentley wrapped his heart up and I know all the grandparents as well as parents are anxious during this time.

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Meliss Carr
1/11/2016 08:25:39 am

She's a trooper. Continuing to pray for B, her team and you two amazing parents.

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Janet Turman
1/11/2016 10:59:32 am

What a warrior Bentley is- our prayers continue Justin for baby B and all of you. Love you all so very much!

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Yvonne Brandes
1/14/2016 07:51:42 am

We continue to pray for your little one!

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    I will be writing most of these.  Justin, that is, the dad.  Lindsay will provide her input.  

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